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I am sure my situation is typical. One morning I woke up and
noticed that my penis was curved and was so upset that I went
back to bed assuming that it was nothing more than a very bad
dream. In a state of shock, I visited a number of physicians and
given the same depressing news. No treatment was available
for the active phase and I should come back after 12-18 months
for surgery. The surgery would correct the curvature, but I may
lose penile sensation, develop severe ED, etc. My next step
was searching the Internet for cures. All I came across were ads
for very expensive and medically worthless herbal treatments.
There had to be a source of objective medical information and
review of findings. However, there was not! I decided to create
this website as therapy for myself and to help other men in my
situation. Other sites and forums are very helpful for men with
our disease. However, as far as I know, this is the only site
where the author expends the effort and considerable expense
to obtain the complete articles (not the short abstract) that
appear in scientific journals. I do not ask for any financial
assistance in preparing this site, but do request reader feedback
so I can determine if my articles are of any value and to obtain
information from readers about their treatment so this
information can assist the wider PD community. Unfortunately, I
have failed in this matter. No matter how much I plead, reader
feedback is minimal. Even those men to whom I provide
assistance fail to make any effort to submit feedback.
- A businessman from Germany inquired about medications to treat
his PD and I told him about Trental. All I requested was some
feedback on how he responded to this treatment – No feedback
- Another younger reader who was recently diagnosed with PD, wrote
me in a state of panic. I give him some advice on what to ask his
urologist and suggested some conservative treatment. He pledged
assistance with this site in terms of making it more professional as
his field of expertise was IT, but again no feedback. I could go on and
on, but you get the point. Some very few men did take the time to
write thoughtful responses to my article. To those men, your
comments were appreciated.
I wrote about the increased incidence of PD after prostate cancer
surgery. If this isn’t important news, I don’t know what is. At the
time of my first report, the PD and prostate cancer link was
limited to very few medical journals. It was certainly something
men would not hear from the average urologist performing a
Prostatectomy. Still, reader feedback was essentially zero.
The last issue contained blockbuster information. ED drugs
result in considerable penile scarring. I have not seen this
mentioned anywhere in the popular press and only came upon
this information by accident. I requested reader feedback and
only one man bothered to respond. I receive many inquiries
about the Xiaflex trials, but absolutely no one currently in the
drug trial has bothered to send me any information on how they
are doing. I do not know if we are all beaten down because of
this humiliating impairment or it is due to man’s natural
passivity. Without decent feedback, this website can't be an
effective advocate for men with our disease.
This current edition of the site will remain online for about 3
months and then I will terminate the site. I wish all of you the
best of luck.
