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NEWS IN BRIEF
GUEST BOOK PAGE – New Feature of this Website. A few of
you have written me requesting that I start a forum or
discussion page. Readership numbers are strong, but don't
know if a message board or forum would be worthwhile.
What I will do is start a guest book. This is the equivalent of a
graffiti wall or Twitter where you can leave short messages
either with your identifying information or it can be
anonymous. Let’s see where this leads. To leave or view a
comment, return to home page and click the Guest Book link.
IN-1130 – Last issue’s lead article was about this promising
treatment for PD. Based on my Yahoo and Site Meter
feedback, the readership interest was tremendous. If you
Google IN-1130, you will see numerous articles about how it is
effective for a number of fibrotic disorders. I have written the
researchers of the PD study, but have not received any
response. In their research, they note that their testing was in
the pre-clinical trial phase. Hopefully, they will move ahead
quickly. If you missed the article, put IN-1130 in the search
box on this page.
NON-PROFIT FOUNDATION – I have seen a number of articles
which conclude that this country has too many 501(c)3 non
profit organizations. Searching Google turns up non profits
for maintaining trails in national parks, promoting peanut
farming in Africa and a number whose sole goal is to rescue
pet cocktails. Unfortunately, there is no 501(c)3 for the
treatment of our condition. One of my goals is to start such
an organization. Originally, I put this only hold because initial
legal fees were in the $7000 range. I have noticed that Legal
Zoom has a discounted procedure for most of this paperwork.
I am not under any illusions that we will be able to raise a
great deal of money for PD research. There was an article in
Forbes Magazine where an executive with a rare disease
started a non profit research foundation and personally
donated 22 million dollars to her foundation. Barring a
miracle, this is not going to happen in our case.
Nothing better illustrates our predicament more clearly than a
recent email I received.
comments = i am sufferring in silence!!!My wife of 30 years is
suffering although she saids nothing.I have had peyronies for
10years and have tried various treatments,nothing has
worked.Strecthed,vapramil,but nothing has worked.ive seen
all the jokes on the internet about the small penis but they
just dont know. Yes i can still reach climax but cant get thr
penetration to please my partner,but she dont complain.....
Lots of foreplay prior.....There has to be some remenedy out
there....Please help
Yes! this man speaks for all of us. I am also putting his email
in the Guest Book to see if you have any comments.
Question: If a PD foundation was started with a budget of
$10,000, I would like your suggestions about how we can
most effectively use these funds. (I use the word, “we”
because are all in the same unfortunately predicament).
NEW YORK TIMES - recently ran an article about erectile
dysfunction and there were six pages of comments. Except
for my comment, neither the article nor the other comments
mentioned PD. This is a further illustration why it is critical
that we must raise awareness about our condition.
Click Here to see the article.
CHINA STUDY – Most of the literature indicates that PD is
primarily an impairment of Northern European men and much
rarer in Asians. This maybe another instance of
misinformation about our condition. In a report 10 April 2009,
Zhejiang University School of Medicine reported on their
experiences with surgical correction of PD. Satisfactory
results were achieved in all chases. Only noted minimal post
op shortening. Don't know if I can believe these results, they
are unbelievably good.
ACTIVE RELEASE TECHNIQUE – Noticed an article in
Adventure Magazine, October 2008, on alternative therapies
for injuries. What caught eye was the mention of injuries as
the result of micro-traumas and build up of scar tissue which
hinders normal function. This is essentially what happens
with PD. Apparently, the use of certain vigorous massage
techniques has been successful in the breakdown the scar
tissue.
PEYRONIES & INTIMACY - I have PD and have seen a number
of prominent urologists, but the advice they gave on this
topic has been far from illuminating. One said that I have a
severe case and my sex live may be over, but never say
never, where there is a will there is a way. A 2nd said to give
it a try and the 3rd said use Viagra, but take it easy. In
searching the literature I have not been able to find anything
very valuable about sexual relations post development of PD.
In the next edition of this website, I want to write about this
topic, but need help. I would like to explore a number of
related issues. If any readers can point me to a website link
on this topic or have any suggestions or comments, please
email me or post the information on the Guest Book.
Coming Up In the Next Edition:
Peyronies Disease - Solves Two Political Mysterious
Traction - Worth the Effort?
And More......