


WHAT THE CURRENT EVIDENCE SHOWS
MY ADDITIONAL COMMENTS
Where does one begin to discuss the findings noted in the
above article? It confirms that we are in the Dark Ages when
it comes to our disease and much more research has to be
done to even begin to address aspects of PD. Many findings
in these articles are contradictory and only serve to muddy
the waters. Let’s review the assertions one at a time.
1) The complete JHU article states that PD is a rare disorder
that only affects 26 out of 100,000. This is truly an absurdly
low estimate. However, I also don’t believe that 24% (high end
estimate in the LA Times) of the general male population has
PD either. It does increase with age with a spike starting in
the 5th decade. Maybe 24% would be an accurate number for
men, but only those in their 70s which have undergone a RP.
2) I have read a number of medical journal articles and
demographic studies about PD and an educated guess would
be that between 6-8% of adult males in the general U.S.
population have PD. The incidence increases with age and
you will find very few men in their 20s with it, but a much
higher incidence rate for men as they age. Although, I did
receive an email from a young man in his 20s who was
experimenting with various devices, such as cock rings and
did injure his penis and developed PD.
3) The JHU article refers to a “rapid appearance of new onset
PD" after surgery. In contrast, Dr. Mulhall notes definitive
penile length loss generally takes in excess of 6 months. PD
is usually not stable until 12-18 months after onset.
5) The time frames mentioned above are 3 months or 6
months plus. In a presentation of 01 July 2008, at the
American Urological Association, it was reported that the
mean duration of symptoms for men with PD prior to visiting
a physician was 17 months, not 3 or 6 months.
6) I only have the abstracts of the 3 studies Dr. Mulhall cited.
Two of three never mentioned that they examined a man’s
erect penis. This is when PD manifests itself with a penile
deformity. Further, It is not clear if the researchers looked for
penile scar tissue.
7) I have to comment on the treatment results noted in the
JHU newsletter article. A physician reported that surgical
correction of PD was effective, but the article failed to
mention that there are frequent, serious side effects, such as
numbness, loss of rigidity, etc.
8) Surgery may be able to correct penile curvature, but there
is no surgical treatment that will be able to restore loss of
penile length or girth.
9) All this is actually good news. PD is a rather common, but
unspoken about medical condition. Publicizing its relation to a
common disease and one so much in the news, such as
prostate cancer, cannot help but bring own condition out of
the shadows.
