| WWW.CUREPEYRONIES.NET email:curepeyronies@yahoo.com |
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| WEBSITE UPDATE When this website was started in late 2007, there were 2 goals. To disseminate information about Peyronies and motivate those of us with this condition to take action to help ourselves. Using these criteria, this website is both a success and failure. I never imagined that site readership would grow so rapidly and have a truly international audience. In order to reach the maximum number of readers, I have a $50-60 monthly advertising budget for either Yahoo or Google Ads. Both have a formula that places ads so that they appear for the entire month. Therefore, if there are excessive clicks for my ad during any given day, the ad disappears so that the advertising budget will be spread out over a month. Given my meager budget, my ad appears for only a brief period each day. The statistics I get from Google/Yahoo in many ways are extraordinary. Internet advertising generates a report on something termed "impressions." This is simply the number of people who have seen my ad, not necessarily clicked, but viewed the ad. This site gets close to 20,000 "impressions" per month. There can only be one of two explanations for this number. Either there are an extraordinary number of Internet searchers looking for information or the same people are spending most of their day going on and off the net looking for information. I don't know the answer, but if readers think they have a clue, drop me a line. This website now has approximately 600 unique readers per month from virtually all states and around the world. The number of readers who send in feedback has also grown. On the next page, I have attached a copy of a recent Sitemeter report and you will get an idea about who is visiting this site. The disappointing aspect of this site is the very low number of readers who are willing to do something. Also, some readers initiate contact and offer assistance and then drop the ball. For example:
To readers of this site, I know that I must sound like a broken record. Nothing is going to happen unless we take action to help ourselves. Xiaflex is the only possible treatment on the horizon. In the unlikely even that it makes it to market, we are looking at the earliest product availability date of 2011. (I said unlikely, because the odds of a drug making it from phase II testing to market is significantly less than 50%) If you are willing to let the next 3-4 years pass without doing anything and without the possibility of any effective treatment, then I really don't know what to say. Yes, I am talking to you: My reader in Dublin who keeps visiting the site hoping for a cure or the reader from Lismore, Australia mentioned above, or the reader from the Czech Republic hoping for information or the repeat visitors from Bellingham, Washington or Iola, Wisconsin and I could go on and on. If my feedback is to be believed, site readership has at least 2 business executives, an attorney, a psychologist and one professor. Does anyone have a suggestion how we can formulate the beginnings of an action plan? We really have to get the ball rolling. TWO NEW FEATURES ADDED TO THIS SITE Beginning with this month’s issue, this site will publish selected reader feedback on a separate page. Unless otherwise instructed, I will delete personal information such as email address. As you will see, most of the stories are depressingly similar. Click here Also, I will have a page where you can post messages, questions, etc. Readers can respond in a forum “like” setting. I say forum “like” because I don’t have time to be a forum administrator. If you submit the feedback form with the first word being “POST” it will be put on the forum page the same day. Click here |