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Let’s Be Realistic
I have received a number of emails, which presume that if one
spends enough time on the Internet or reads my site with
sufficient diligence, a cure or at least a very effective treatment
can be uncovered. To those readers, let me save you time and
effort. There is no cure for our condition and precious little in the
way of an effective treatment.
Real Simple Syndication (RSS)
RSS is a tool used to keep websites and blogs up date. Usually,
you can insert code on a site with information about a specific
topic such as you see on my prostate page. Unfortunately, PD is
a less well know topic and requires that I go to specialized
medical cites, create a filter that will only channel the news I want
to this website via a news aggregator. Frankly, I can not figure
out how to accomplish this task. Are there any readers who can
help me so I can update this site more frequently?
Definition
Every once in a while I get an email from someone who says that
he want to help with outreach, but he has no particular skills or
money. Is there someone out there will to take on a task that
requires no specialized skill or money?
To define a medical topic may seem like a very mundane and
unimportant task. For someone like myself who has worked in
the legal field, the definition of an illness is of extreme
importance. It determines, in part, how much publicity the illness
receives, leading to public interest, funding and research.
Currently erectile dysfunction is defined as the inability to get or
maintain an erection that is firm enough to have satisfactory
intercourse. Whenever there is an article on erectile dysfunction
(and there are many) if someone would please volunteer to write
the publication and tell them that their definition is inaccurate and
complete without add the phrase "or satisfactory intercourse is
difficult or impossible due to a penile deformity such as
Peyronies Disease." For an excellent illustration of the
importance of a proper and complete medical definition, Google
The New Yorker Magazine, March 01, 2010, article title “Head
Case” to read about how difficult, but important it is to define an
illness. In this case, a psychiatric impairment.
Beta Blockers and Peyronies
On a website that reports adverse reactions to drugs, it was
noted there were 62000+ reports of adverse events due to
Atenolol, a beta blocker. Eight men who were taking this drug
reported developing PD. I was on this drug when my Peyronies
began. There has been much speculation about the relationship
between beta blockers, including Atenolol and the development
of PD, but I don’t know if my situation or just 8 cases prove
anything.
Low T
There have been a number of article in medical journals
suggesting that low levels of testosterone maybe related to the
development of PD, severity of curvature and plaque size. (For
further information, type testosterone in the search block on this
page.) I had my testosterone level checked and it is in the high
normal range. Whatever the cause my disease, it was not a low
level of testosterone.
Standards for Clinical Trials
The Journal of Sexual Medicine, July 2010, had a lengthy article
on the standards that should be used in clinical trials for men with
sexual dysfunctions and PD was actually included in the
discussion. This article contained a rather good discussion of the
phases of our disease. The following points were made:
•Quite often, the course of PD is characterized by phases more
than just active and chronic. There appears to be a progression
whereby nodules and deformities can change their location and
direction.
•In later stages, patients complain of “marked shrinking” of their
penis.
•Many conservative treatment trials have exhibited considerable
design flaws.
•There has been no general agreement on objective measures
required for scientifically valid clinical trials.
. They also called for measurement of the Penis Circumference
Here is a list of recommended considerations for future clinical
trial as noted in the article. If anyone has any comments or
further suggestions let me know and I will make them know to
the authors.
